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cover of episode The mysteries of endometriosis

The mysteries of endometriosis

2021/8/18
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Unexplainable

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B
Bird Pinkerton
K
Kaylee O'Keefe
M
Misako Yamazaki
N
Noam Hassenfeld
受访者1
受访者2
受访者3
Topics
Noam Hassenfeld: 本期节目将讨论子宫内膜异位症,这是一种常见的慢性疾病,其病理机制尚不清楚。 Bird Pinkerton: 子宫内膜异位症影响着高达十分之一的育龄女性以及其他性别认同的人群,其症状严重程度差异很大,从轻微不适到严重致残不等。许多患者对该疾病知之甚少,感到沮丧。 受访者1: 分享了自身患有子宫内膜异位症的痛苦经历,以及在寻求医疗帮助过程中遇到的性别歧视和种族歧视。 受访者2: 解释了子宫内膜异位症的病理生理过程,以及症状的个体差异。子宫内膜异位症的诊断需要手术,目前尚无其他明确的诊断方法。 受访者3: 描述了子宫内膜异位症诊断延迟的现象,以及该疾病对其日常生活、性生活和生育能力的重大影响。 Misako Yamazaki: 通过诗歌表达了子宫内膜异位症患者的痛苦感受。 Linda Griffith: 介绍了其团队正在进行的子宫内膜异位症研究,包括构建微型病灶模型和利用机器学习技术对疾病进行分类,以期开发更有效的治疗方法。 Kaylee O'Keefe: 通过诗歌表达了子宫内膜异位症患者的痛苦感受。 核心观点补充:目前子宫内膜异位症的治疗方法多种多样,效果因人而异,且可能存在严重的副作用。手术是另一种治疗子宫内膜异位症的方法,但它并非总是有效,而且可能需要进行多次手术。切除子宫也并非万全之策。目前子宫内膜异位症的治疗方法有限,需要更多的研究和资金投入。随着更多像Linda Griffith这样的患者兼研究人员参与进来,子宫内膜异位症的研究和治疗有望取得进展。

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Endometriosis is a condition where tissue similar to the endometrium grows outside the uterus, causing pain and other issues. It affects up to 1 in 10 women and potentially more people who don't identify as women. Many experience severe pain and frustration due to the lack of understanding and treatment options.

Shownotes Transcript

This common chronic condition — where tissue similar to what grows inside the uterus grows elsewhere in the body — is barely understood. So why is a condition so prevalent and painful still so unknown? It has a lot to do with who gets to ask research questions.

Correction, August 18: An earlier version of this episode implied that the tissue involved in endometriosis is the same as the endometrium, which lines the uterus. It is similar tissue, but not identical.

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