Parents of genuinely chronically ill children are typically anxious and relieved when their child improves, while Munchausen by proxy parents often exhibit a 'yes, but' pattern, where they push for unnecessary procedures and claim the child remains ill. They also engage in doctor shopping to validate the child's illness, and their behavior often escalates with multiple body systems being affected. These parents are highly convincing and may present as victims or assertively claim to know more about the disease than doctors.
Dr. Southall identified three groups: 1) Mothers who have no interaction with their children except to harm them, 2) Mothers who engage normally with their children but then harm them, and 3) Mothers who actively hurt their children in multiple ways, such as pinching or breaking bones. The third group is considered the most dangerous due to their overt and severe abuse.
In a study of 45 families, the mortality rate was 17%, which is significantly higher than other childhood illnesses. For example, infectious diseases, the most common cause of death in children, have a 10% mortality rate for ages 1-4 and 5% for ages 4-14. Congenital heart conditions, which used to have a 77% mortality rate in 1990, now have a 2% mortality rate due to improved treatments.
Adult survivors often struggle with identity issues, PTSD, and difficulty forming long-term relationships. Many were confused about their abuse until they were separated from their abuser and safe. Some survivors continue to fabricate or induce their own illnesses, while others can lead relatively normal lives with strong support systems. Understanding the abuse and having a safe, permanent placement are critical for recovery.
The term 'medical child abuse' does not capture the dyadic nature of Munchausen by proxy, which involves both a diagnosis for the parent and the child. It also fails to account for the psychological, emotional, and educational abuse that often accompanies the physical abuse. The term 'child abuse by illness falsification' was proposed to better encompass these aspects, but it has not been widely adopted.
Perpetrators who may be capable of rehabilitation often have a history of severe trauma, such as sexual abuse or being parentified in their own families. They may feel compelled to harm their children but express a desire to stop. These individuals often interact normally with their children outside of the abusive behavior and may respond to long-term treatment, especially with court oversight and support.
Fathers in Munchausen by proxy cases often fall into two groups: those who enable the perpetrator and those who are estranged and fighting for custody. Enabling fathers typically stay out of the child's healthcare and support the mother's narrative, while estranged fathers may struggle to prove the abuse in family court, where both parents are presumed fit. Fathers who discover the abuse often face significant challenges in protecting their children.
Munchausen by proxy is likely more common than believed, but it is often considered rare due to misinterpretation of a British study focused solely on suffocation and poisoning cases, which represent only a small percentage of Munchausen by proxy cases. This study's findings have been incorrectly extrapolated to suggest that Munchausen by proxy is extremely rare overall, despite evidence from other studies indicating a broader prevalence.
Diagnosing Munchausen by proxy is challenging because perpetrators are highly convincing and often present as nurturing parents. Healthcare professionals may be taken in by their behavior, and the abuse can be subtle or involve multiple body systems. Treatment is difficult without a genuine admission from the perpetrator, and even those who admit to the abuse often require long-term court oversight and support to prevent relapse.
Key factors in recovery include understanding the abuse, connecting with other survivors, and having a strong support system. Survivors often need to revisit their medical records and confront the truth about their abuse to break through the trauma. They also need protection from persistent perpetrators, who often continue to seek contact even after the child has grown up. Permanent placements with supportive caregivers are critical for long-term recovery.
In this last bonus episode before our season 5 premiere next week, we’re airing Andrea’s conversation with Dr. Catherine Ayoub, an associate professor at Harvard Medical School, APSAC member, nurse practitioner, and counseling and consulting psychologist. Cathy tells listeners about her background and first encounter with Munchausen by Proxy. She and Andrea chat about the different groupings of perpetrators and the characteristics/background that may signal that an abuser can be rehabilitated. Cathy dives into family dynamics, and her current study on the long-term effects of this abuse.
Links and Resources:
More about Dr. Cathy Ayoub: https://www.childrenshospital.org/directory/catherine-ayoub)
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