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cover of episode Bonus Episode: The Aphasia Choir

Bonus Episode: The Aphasia Choir

2025/2/15
logo of podcast Consider This from NPR

Consider This from NPR

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Anna King
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Erica Heilman
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Scott Detrow
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Scott Detrow: 患有失语症的人们虽然在语言表达上存在障碍,但他们往往能够通过歌唱来表达自己。这是因为音乐在大脑中主要由未受损的半球控制。因此,音乐成为了他们沟通和表达情感的重要途径。 Erica Heilman: 安娜已经与失语症抗争了19年,她一直在努力克服语言和词汇上的困难。她的故事让我们思考,在一个充满言语的世界里,那些难以找到词语的人们是如何被对待的,以及沉默的意义是什么。通过她的经历,我们可以更深入地了解失语症患者的内心世界。 Anna King: 自从那场可怕的自行车事故后,我的生活发生了翻天覆地的变化。我不得不重新学习如何思考、说话、站立,一切都像是从头开始。我曾经梦想着去UVM学习化学,但事故改变了我的轨迹。虽然我经历了孤独,但我明白黑暗与光明是并存的,它们构成了完整的人生。我希望人们能够对失语症患者多一些耐心,理解他们想要表达却难以找到词语的痛苦。即使无法完全理解,陪伴本身就是一种支持。父母和狗狗的爱让我深受感动,而Karen(合唱团创始人)将我们聚集在一起,给予我们爱和支持。在合唱团里唱歌是一种快乐的体验,就像咬一口桃子,同时遛狗一样,生活中的点滴都弥足珍贵。每天呼吸新鲜空气,感受生活的美好,这让我更加珍惜每一天。

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Hey there, Consider This listeners. We're back with another Saturday bonus episode for you. It's part of our new series of short-form audio documentaries. It's a story about speech and silence, about loneliness and joy, even small joys, like biting into a peach. So stick around. From NPR, I'm Scott Detrow.

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It's Consider This from NPR. There are at least 2 million people in America who have thoughts and ideas that they can't put into words. People who have had strokes or traumatic brain injuries often live with aphasia, difficulty using language, both written and spoken. But music mostly originates in the undamaged hemisphere of the brain, so people with aphasia can often sing. I like to hold it in my arms and keep it company.

This is the Aphasia Choir of Vermont, founded more than a decade ago by former speech-language pathologist Karen McPheeters Leary. And today, for our weekly segment of short-form audio documentaries, we are going to meet one of the members of the choir.

This story is brought to us by Erica Heilman from the podcast Rumble Strip. Do I think I will know when to come in? That's Anna King getting ready for her solo with the Aphasia Choir of Vermont. Anna has been living with aphasia for 19 years, struggling with language and with word finding. We take language utterly for granted. We talk and talk again.

So what is it like to be someone struggling to find words? And how are they met out in the world of talkers, in a world pretty uncomfortable with silence? Here's a tiny window into Anna's world. Welcome. Chris, I was thinking more of a fade-out. I was exercising.

When I had this horrible bike accident, then everything changed. I had to learn how to think again, speak again, talk again, get up again. How old were you? 18.

I was, like, three months after I had graduated, I was going to go to UVM for chemistry. But then my life took a different turn. Like, there is loneliness, but...

Darkness and lightness, like you can't have one without the other. And I understand that really deeply. What are the 18 sort of common ways that people react in moments with people who are struggling to speak?

Don't let them talk. Speak loudly to them. I wish that everyone could be patient. There's something someone wants to say, and they're not finding the way to say it. And I'm not guessing it. So there's a silence.

What is the silence, the giving up of the guessing, but just being there anyway? What does that mean to the person who can't speak? Everything. Yeah. You don't get it and you just will try and then fail. And you tried. A human kind. Yeah. Yeah.

And you can be kind. Yeah. What about love? Oh, that really touches me. Yeah, because my parents loved me so much. And my dogs love me.

And I think I have not experienced, I am kind of not an experience in love, but I think that that's what Karen does for us. Like it brings us all together. Joy is what you're describing. Yeah.

The experience of getting all in a room and singing. And I think biting into a peach while walking my dogs. Like, they just got that. This life is precious. Every day, like, you go out and you smell.

Yeah. You know? Yeah. On June 2nd, the Aphasia Choir had their ninth performance to a sold-out audience. It was a hit, of course, because the Aphasia Choir is awesome, but also because Karen had the good sense to pick some excellent songs from the 80s. How did your solo go?

I think it went good. I want to hear it. Yeah. Hold on. Anna pulled up the recording on her phone. Hold on. Hold on. Hold the phone. Hold the phone. You with the sad eyes. Don't be discouraged. Oh, I realize.

It's hard to take courage in a world full of people. You can lose sight of it all. The darkness inside you may make you feel so small. I see your true love. I see your true love. And that's why I love you.

Don't be ashamed. That was Erica Heilman from the podcast Rumble Strip. She's also a reporter for Vermont Public, where a version of the story previously aired. That story was produced by Erica, and this episode was produced by Noah Caldwell and edited by Ashley Brown. Our executive producer is Sammy Yenigan. It's Consider This from NPR. I'm Scott Detrow. ♪

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