cover of episode Fighting for Care

Fighting for Care

2024/6/26
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Uncared For

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People
M
Maggie
通过参与拉姆齐网络的播客,提供广泛的财务建议和教育。
R
Renee Hanania
S
Susan
Topics
Renee Hanania: 作为一名特殊需求儿童的母亲,我深知照顾孩子所面临的挑战。布兰登八岁时突发疾病,彻底改变了我们的生活。我不仅要应对他复杂的医疗需求,还要与医疗系统作斗争,争取应有的权益。我创建了一个社交媒体群组,与其他家庭分享经验,互相支持。我始终坚信,永远不要放弃,要成为孩子的耳朵、眼睛和嘴巴,为他们争取最好的生活。 Susan: 照顾患有严重健康问题的儿子,我深感系统的复杂和不完善。我们刚搬到这里,需要重新发现所有的服务和项目。很多时候,我们需要在实践中学习,或者从别人那里听说。是这些系统让我感到沮丧,但看到我的儿子在疾病中成长,变成一个坚强的年轻人,我感到非常欣慰。 Maggie: 我的儿子得到了很多很好的服务,有一个很棒的护理团队,但这仍然很艰难。医疗保健系统没有提供太多的指导,我希望能够为我和我的儿子提供更多的指导和理解,并打破复杂性。我们将一起克服这些系统,最终获得快乐和爱。

Deep Dive

Chapters
Renee Hanania, a mother of a 22-year-old son, Brandon, who has a disability requiring round-the-clock care, shares her experiences. She describes the challenges of caring for Brandon, including his complex medical needs and her own battle with stage four breast cancer. The chapter also touches on the sudden change in their lives after Brandon's diagnosis.
  • Renee's son, Brandon, has a disability requiring constant care.
  • Renee is battling stage four breast cancer.
  • Brandon's life changed drastically after a sudden illness at age eight.

Shownotes Transcript

 

How can a family caregiver look after her loved ones and herself while navigating a broken healthcare system? Renee Hanania has been advocating for her son Branden to receive care for his disability under Medicaid, piecing together a “care village” for him and his complex needs. All the while, she’s also been battling her own health concern: stage four breast cancer. 

Keep up with Renee and Branden via their Facebook group, https://www.facebook.com/BrandenTheBrave/). For more information about why you may have lost health care coverage since the unwinding of continuous Medicaid enrollment in 2023, visit https://www.kff.org/medicaid/issue-brief/10-things-to-know-about-the-unwinding-of-the-medicaid-continuous-enrollment-provision/)

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

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