Welcome to the LSE Events podcast by the London School of Economics and Political Science. Get ready to hear from some of the most influential international figures in the social sciences.
Okay, let's make a start. I hope everyone can hear me okay. So good evening and welcome to the LSE, to this public event. So I'm Dr. Lewis Ross. I'm a member of the Philosophy Department and the Director of the Centre for the Philosophy of Natural and Social Sciences, which is the host for this event. And I'm very happy to chair this event on assisted dying. So assisted dying policy raises extraordinarily difficult questions about life and death.
And at the moment we currently stand at something of a threshold. While there are few states around the world where assisted dying has been permissible for some time, most states do not recognise any right to a state-supported death and treat suicide primarily as a
public health matter. Yet a growing number of jurisdictions around the world are starting to rethink the law on assisted dying and the UK of course is one of them. So right now a proposed law on assisted dying is making its way through the Parliament and has provoked vigorous debate. So it's a topic that raises and continues to raise very strong feelings. It forces us to ask
deep and difficult questions about ethics, philosophy, law and religion.
So what we do at the LSE and what motivated me to host this event when we're confronted with these difficult questions is we try and make progress on them collaboratively, we consider the evidence and we listen to expert opinion. So on that note we're very lucky to have a truly enviable panel of experts joining us tonight to give us their perspective on this very difficult question. So I'm going to let the panel introduce themselves in order so you can get a flavour of their connection to this topic.
I'm Father Hugh Mackenzie. I'm a Catholic priest based just down the road in Westminster Cathedral, one of the chaplains there. I also go into a hospice in St John's Wood quite a bit of my time, actually, over the last ten or more years. I have been involved in the Catholic Medical Association, studied some philosophy of science, even here a little bit as well,
Hi everyone. I am Kenneth Chambard, but in English you can say Chambair. That's also a bit better to pronounce it that way. I am a professor at Ghent University in Belgium, Belgium being one of the countries that has assisted dying legislation since 2002 already.
And I work at the end of life care research group. So all the research that we do is on end of life matters. So also palliative care for instance. But most of my research career, let's say,
More than half of my research has been focused on assisted dying. I'm also engaging with a few people in the UK on questions on assisted dying. So yeah, I've been at it since 2006. My PhD was on the topic and yeah, I think we've built up quite some evidence and I think I can also speak to a little bit the international situation as we have been following that up as well.
Good evening, I'm Alex Forouva. I'm a professor in the philosophy department here. My main area of research is justice in health.
and I've worked here in the United States National Institutes of Health in their bioethics division and at Erasmus University Rotterdam where I'm also from, the Netherlands. So I have some experience of the Netherlands which also like Belgium in 2002 passed legislation de facto legalizing certain forms of assisted suicide and voluntary euthanasia.
Perhaps it's also relevant to mention, because in these debates one also sometimes learns, sadly, from personal experience, that together with siblings I had the care for a relative over six years who died of a terminal illness.
We struggled, like so many of us do, with their path towards the end. I'll be speaking both as a philosopher, but also partly from personal experience. Thank you. I'm Emily Jackson. I'm a professor in the law school here at LSE. I've been interested in these issues for many, many years, and I think that's
I think like everybody has personal experience that you inevitably bring to bear to them. I was an advisor to both the Nuffield Council on Bioethics Citizens' Jury on assisted dying recently and before that the Jersey Citizens' Jury on assisted dying. And more than a decade ago now, I was on the Department of Health panel to review the Liverpool Care Pathway, which was an end-of-life care pathway.
Fantastic. Okay, so the plan for the evening is we're going to investigate the views of the panel, what they think the central issues are and where the controversies lie. And then around the halfway mark, we're going to turn to give you the chance to interrogate the panel, to ask some questions of them, both in person but also the online audience. So I think, it's hard to imagine this, but apparently there's some hundreds of people
watching this online and there'll be thousands of other people who watch the podcast. It's on YouTube and such like. So we'll take some questions both online and in person. One thing I would ask is when we turn to the Q&A, this is a very difficult topic. So as Alex says, it raises difficult philosophical questions but also ones that on a personal level we feel very deeply about because they're difficult, vexed issues. So one thing I would
ask is that when we engage in questions, we try and keep the discussion sort of considerate. But I'm going to start by asking some questions of the panel to get a flavour of their views. And I think maybe we've got one eye on this question of the
the pros and cons of this legislation that's going through Parliament. So maybe it makes good sense to start with Emily. So you're our legal expert and you're someone that's closely studied the proposed legislation. Would you be able to give us briefly a sense of the shape of the new proposal in England and Wales and a flavour of the debate and the controversy that surrounded it? Absolutely, yes. So what I'm going to do is say a few things about what the bill actually does.
and then make a few comments about it. So the Terminal Adults End of Life Bill is currently at committee stage in Parliament. So it was introduced as a private member's bill by Kim Ledbetter in November last year, where it received a majority of 55 at second reading.
but there's absolutely no guarantee that it will become law so although it receives the majority there there are lots more stages for it to go through so after committee stage um there have been hundreds of amendments tables as part of committee stage
It's then going to go back to the Commons for what's known as report stage, where more amendments can be made. There'll then be another vote in the Commons, and at that point it then goes off to the House of Lords, and of course I'm sure the House of Lords will have lots of things they want to say about it. So it's by no means a done deal, it's by no means over, there's a lot more stages for it to go through.
So what the bill does is it makes it possible in some really quite restricted circumstances for terminally ill adult patients to ask for assistance in dying. And what that means is that they can ask for the prescription of a lethal medication, which they must self-administer. There's no option in the bill for physician administration. It has to be self-administration. So the bill defines terminal illness as an inevitably progressive condition which can't be reversed...
and from which the person is reasonably expected to die within six months. So it doesn't have to be a firm guarantee that they would be likely to die within six months, it just has to be reasonably expected that they would. So it wouldn't surprise you if they were to die within six months. The Bill also spells out that you can't be considered terminally ill by reason of a mental disorder or a disability.
There are more criteria. The other criteria is that they have to be an adult, they have to be ordinarily resident in England and Wales. There's a separate and different bill before the Scottish Parliament. They must have mental capacity as defined by the Mental Capacity Act.
and they must have a clear, settled and informed wish to end their own life. And they must have made that decision voluntarily, and they must not have been coerced or pressured by any other person into making it. And separately, the bill makes exerting coercion and pressure on somebody to do this a criminal offence, a serious criminal offence, punishable by up to 14 years in prison.
Two separate doctors must confirm that the eligibility criteria are satisfied and there must also discuss with the patient other options of palliative, hospice and other care including psychological support. If there's any doubt about mental capacity or if one of the doctors is not an expert in the terminal illness, an independent specialist must be consulted.
In the bill's very latest iteration, as well as these two doctors' approval, the person also needs to have approval from a panel made up of a senior lawyer, who could be a retired judge, a psychiatrist and a social worker. In the original bill, there was the requirement for the approval of a high court judge. Doctors' participation in assisted dying is voluntary. Nobody can be under any duty to participate in this.
The bill also imposes two separate periods of reflection. There has to be seven days between the two doctors' assessments, and then after the panel decision, there has to be another period of reflection of 14 days. That can be shortened to 48 hours if the person's death is imminent.
So it's been described by the MP who introduced this, as well as by others, as the toughest regime in the world, with safeguards upon safeguards. Nevertheless, there are people who think that it's still not tough enough. Indeed, there are people who think that no law could ever be tough enough, and sometimes, of course, that might be because people think that assisted dying is always morally wrong, in which case, however tough a law is, that won't get rid of that objection. I just want to say a few things about it.
So, one of the most common concerns voiced by opponents of the bill is the worry that it will be difficult for these two doctors and the panel to spot cases of coercion, particularly cases where somebody feels under pressure to end their life because they're worried about being a burden to their family. I'd make two responses to that.
The first is that we already allow adult patients with capacity to insist that doctors cease providing treatment that's keeping them alive or treatment that's necessary to save their life.
Now of course those patients might be vulnerable and they might be worried about being a burden. But in those cases we think that one doctor, because you only get one doctor then, that one doctor is capable of identifying coercion and pressure in people who wish to refuse a blood transfusion or wish to refuse consent to mechanical ventilation. If we think one doctor can do that satisfactorily in those cases,
I find it hard to understand why we think two doctors in a panel would be completely incapable of doing that, exactly the same thing, making exactly the same judgment about capacity and pressure when somebody wants to have an assisted death. So we're doing these capacity and voluntariness assessments all the time. They are completely routine. And there isn't some huge outcry about people refusing treatment in circumstances where they come under pressure.
The second thing I'd say about this concern is that there's quite a lot of evidence from places where this is lawful.
that the reality in terms of family pressure in cases of assisted dying is that families put people under pressure not to do this. The Public Bill Committee heard quite a lot of evidence from people in jurisdictions where it's lawful that people want their loved ones to stay with them for as long as possible. So the pressure commonly comes from people saying, please don't do this, I want you to stay with me.
Another common argument we've heard against this bill, which is I think an interesting one, is the idea that you can't legalise assisted dying while palliative care provision is inadequate.
And I think it's absolutely clear, I think we can all agree that palliative care provision in this country needs to be better. It's a scandal that to fund palliative care you have to sell second-hand cardigans and fund it by charitable donations. So there needs to be better funding. And as the Health and Social Care Committee found last year when it did a report on assisted dying across the world, it's really, really common in jurisdictions where assisted dying is lawful
for legalisation to go hand in hand with improved funding for assisted dying and improved access to it. I think this happens certainly in Belgium, and Ken can say something about that. But what happens in those cases is when palliative care improves,
in those countries, you don't see a dwindling of requests for assisted dying. There's absolutely no evidence that better palliative care results in fewer requests for assisted deaths.
So we can talk about some of the provisions in the bill in more detail. And I think there are interesting questions about why they're having so many safeguards and so many stages to go through means that actually in practice relatively few people are going to be able to access assisted death. There are just three other points I wanted to make before stopping that I think matter. First of all, in countries where assisted dying is lawful, there is no evidence of overuse by vulnerable populations.
Actually, in practice, the evidence appears to show something slightly different, that people who are interested in assisted dying for themselves are often people who are relatively privileged, who've been able to exercise quite a lot of control over their lives and who want access to assisted dying as a result. And as I've mentioned, people seek access to assisted dying even when they have access to the very best palliative care.
Secondly, there's I think quite a lot of evidence that in addition to assisting the relatively small number of people who will ever actually access an assisted death,
The availability, the legality of assisted dying helps a much wider group of patients who may never use it but for whom it represents what might be called a hypothetical exit plan. So the possible availability of assisted dying serves as a kind of comfort blanket that reassures people who are fearful of what lies ahead
If it did all become unbearable, they would be able to end everything. So this much wider group of patients, and I would include myself in this group, feel that it makes it easier for you to bear whatever life is going to throw at you because you know you have a way out of it. You know you'll be able to stop it if you need to.
There's quite a lot of evidence that our capacity to endure pain is higher when we have an off switch. It enables us to live with the burdens of treatment. Final point for me, in countries where assisted dying is lawful, there are very, very high levels of public support for its continued availability.
So Canada is often held up as a country with very much looser provisions than our bill. 90% of adults over the age of 55 in Canada support the medical assistance in dying that's available there. So I think it's quite important to note that proximity to assisted dying, familiarity with it, makes people less rather than more fearful of it. And I'll stop there.
Thanks very much, Emily. So now we've got a flavour of the nature of the bill, I want to zoom out a little bit and bring in our resident philosopher. So Alex, you've worked extensively on the sort of philosophical principles behind all different manner of healthcare policy. Could you say something about how you see this issue as a philosopher? What are the sort of philosophical principles involved?
As was mentioned in the introduction, you're also from the Netherlands. So I think for many of the audience, this is a state you'll associate quite strongly with a more liberal regime on assisted dying than we have in the UK, and even more liberal than the proposed legislation, as Emily outlined. Do you think that the fact that you've had some experience of living in the Netherlands and your experience there, does that shape how you see these issues? Yeah, for sure. Thank you very much.
Philosophically speaking, I think there are three issues that are at the heart of any justification for a bill that would legalize physician-assisted suicide and going even further than that, getting the physician to actually administer, not having to self-administer, but getting the physician to administer the lethal dose.
And those three things are very straightforward in a way, and they came out in the Nuffield Council of Bioethics public deliberation that you consulted on. You can find the report online, and it's easy to summarize. The first is to reduce suffering, especially unbearable suffering with no prospect of improvement, when the alternative...
means of alleviating that suffering are judged by the person and by experts to be not adequate, not as good as death. The second is to give competent people power over their own lives and deaths. One of the most difficult and intimate decisions that we can make in our lives is to have the ability to self-determine. This is hugely important. Self-determination here has two aspects.
One is the absence of interference by the state, the absence of a prohibition on you and your doctor deciding together that you would like to end your life.
And moreover, the presence of an opportunity, a genuine opportunity, not merely the absence of a prohibition, but the support, for example, by making it available on the NHS. And even though no doctor is obligated to provide this assistance to you, I think the British Bill does say that they have to refer you to another doctor who may be willing to make the assessment. In other words, it's the end of a prohibition,
and the presence of an enabling set of circumstances that contribute to our self-determination in these important matters. And the third is exactly the point that Emily ended on, which is the knowledge that this is available to us is important well beyond the people who will in the end use it.
It's important to anyone who has the fear of having to endure a long period of suffering or indignity. And it's really interesting, it goes all the way back to some of the earliest philosophers I've studied, Epicurus, for example, the Epicureans, who famously said we ought not to fear death. One of the key reasons for getting rid of fear about pain in life was the knowledge that you could end it.
at any point if you so chose. One of his followers says it as follows: "We should be able to free to quit when the play..." He said, "Quit the theatre of life when the play has ceased to please us or when it causes us pain." So that knowledge, claimed the Epicureans, gives us calm in the face of potential suffering because we know we're capable of ending it on our own terms.
However, I do think we need to recognize some reasons against. And interestingly, these also came up in the discussion of the Nuffield Council Bioethics with individuals. The first is that it's possible that the change in the law might open people up to unwanted pressure, pressure that they themselves would prefer not to face.
The philosopher David Velleman points out that we may prefer not to face a certain option because the mere fact that we face that option might expose us to pressure that we otherwise might not have. And the second is that, of course, it could open the door to forms of abuse or to cutting costs, for example, in palliative care. What I would want to point out about these
pros and cons is that to significant extent they depend on empirical claims, especially the two cons that I mentioned, the idea that people might not want to face this option because it would open them up to unwanted pressure and that it would lead to poorer provision of palliative care or other forms of end-of-life care.
are empirical claims and we can look in jurisdictions where the reform has taken place of the kind under consideration in Britain to see whether it has happened or not. The same is true of some of the claims in favour, but I think the core claim about self-determination is not really an empirical claim. It's an essentially normative moral claim
that each of us who is competent should have this ability to control the end of our life when faced with potentially unbearable suffering. Others, I mean, Emily spoke eloquently already about where the balance of evidence lies. Let me briefly summarize where the Netherlands stands, which, as Emily pointed out, is a much more liberal regime than is under consideration in Britain now. So since 2002...
voluntary euthanasia and physician assisted suicide have been legalized if it's obviously voluntary and well considered, the suffering due to a medical cause which can be physical or mental is judged to be unbearable with no prospect of improvement. Notice that there is no limitation to terminal illness here, just unbearable suffering with no prospect of improvement.
The person in question has been informed of their options. The fourth condition is that in dialogue the physician and the patient arrive at the judgment that euthanasia or voluntary assisted suicide is the only reasonable option for them. The fifth is that an independent physician has to be consulted.
And the sixth is that due medical care has to be provided throughout. And then finally, the core case, although we can discuss some other cases later, is one of competent adults, let's say older than 18, but it's also permitted for minors in the range from 12 to 18. From 16 to 18, the parents have to be consulted, though it's not necessary that they give their assent. From 12 to 16,
the parents have to give their consent alongside, naturally, the assent of the minor. At the end of a process, once it's been completed, a report has to be made to a specialist committee, there are a number of such specialist committees, and they can decide to refer a case where they think these conditions have not been met to the public prosecutor. Now, what is the upshot, so to speak? It's actually that a very substantial...
of deaths in the Netherlands, between 4% and 5% in recent years, is as a consequence of euthanasia, and that roughly two-thirds of all cases involve a terminal or very serious cancer diagnosis. So that's the overwhelming difference
The balance of cases involves that. Interestingly, the Netherlands is sometimes also discussed in the context of the widening group of individuals who are gaining access to euthanasia. I'll leave those non-core cases for later discussion because they raise special issues. Thanks very much. We'll come back to some of these issues later.
later, especially given the volume of people who make use of this option in the Netherlands. In light of what you said, giving someone a certain option can change their attitude to how they view their life. It might indicate a societal shift in how we view the nature of life and death. The status quo is not that we see it as an option or something we have to justify or something we have to explain.
concern many people have had is that the provision of this option might change our psychology when it comes to thinking about our lives. So I want to dig into this. In the meantime, I want to turn to Hugh. So Hugh, you've been the chair of the Ethics Committee of the Catholic
Medical Association and you've served in an advisory role on the new legislation. Can you talk us through your perspective on this topic? Yes indeed. Thank you very much for inviting me to this illustrious and very friendly panel. So far. So far. And indeed setting up the constructive respectful atmosphere for this discussion. I would just like to make three
points really, or three areas, one on religion, one on reason, and one on practicalities. So that's mainly my religion, I suppose, not so expert on other people's, and then also on the role of reason.
and then one or two practical thoughts with regard to the committee stage we're in that Emily so clearly outlined for us. So the first one on religion,
and part of the Roman Catholic tradition. I think it's known for having a sort of, you know, Emily briefly referred to that at the beginning, one of those fairly sort of principled position that all human life, all members of the human species have a basic dignity. And indeed we're made for relationship with God and for each other and that defines who we are. That's a core value.
And also, given the, in our tradition, the centrality of the cross as well, on which Jesus suffers, suffering is a bad thing, certainly.
But it can never be seen as the main thing to avoid or to fear, indeed, in that tradition. There's always other and sometimes greater values and hopes to be brought in to the discussion. Just so you know, from our tradition, we wouldn't assume that the very laudable desire to...
reduce unbearable suffering is automatically the sort of number one or one of the basic three principles involved in this debate.
So indeed, so given that, it is true that as I think Emily sort of touched on it maybe at the beginning, that in a sense, however many safeguards we put in place, we're probably not going to be happy with the bill really. So that's one position that we would obviously have.
So we're not going to be happy with the idea of healthcare professionals and others actively helping someone to so devalue their own life that they formally enable the patient to end it. In my experience in a Catholic hospice, that...
My experience of that, obviously I've had to sort of reflect about this in the light of Vicky being kindly invited here as well. You know, I think it's true to say that at the moment is unthinkable in the way we operate that really...
If someone comes in, I'm involved in the multidisciplinary team, we get to talk about patients about to come in and coming in, and if we know that naturally they can be a bit downhearted, sometimes very downhearted, well, immediately everybody, I'm sure this is true in most hospices, want to change that. That's the assumption. We're all working together to raise the mood and help the person discover that they are important.
So to introduce into our minds, it probably wouldn't be in hospices this takes place, indeed they're talking of private companies now, but to sort of introduce the idea to us that maybe we...
don't have to mention it, although that amendment was rejected as the vast majority have been on the committee. The idea that the doctor shouldn't mention it, that's been rejected. But to even put the idea into our minds, I think, is just against the way
that we think about human beings. So the second point, well that's just if you like a sort of
doctrinal thing. The second point, from the point of the rational side of it, so in a sense I've just presented a sort of religious position and I've been kindly invited to present a religious angle. But obviously within our ethical tradition as well we absolutely believe in reason and we're in a fantastic department here, aren't we, of philosophy that I've been lucky enough to experience and we want to learn from that and engage with that.
Indeed, we find ourselves in a broad coalition in opposing the bill of people who are not necessarily doing it for religious reasons. For us, I suppose, one heart principle that hasn't been mentioned is that self-determination for us and freedom is for love. It's a power that's made for relationship, for engagement with others, for friendship.
Human freedom or autonomy is not an absolute thing, but from our tradition it's manifestly ordered to fostering friendship. So to act as an island cut off from culture and human connection is, for us, it's unnatural, it's inhuman. So pure autonomy, maybe we can discuss the term self-determination, but a sort of radical...
Pure autonomy for us would undermine real freedom. No human action is purely private. We're all part of an ecosystem in which we influence each other. We're cultural beings and we're called to community and that's a fundamental value. Moreover, to be unwanted is the worst form of suffering. It's always what torturers use when they're trying to torture someone and say, "No one cares for you." That's the worst type of suffering.
So being loved can get us through, we believe, any physical suffering actually will get us through. That's a debatable phrase perhaps but the fostering of love and friendship of being wanted is a fundamental value, not really simply avoiding suffering that we want to do everything we can. I think we're very successful in my hospice and I think most hospices today
This is notwithstanding that, and also we don't need to prolong life, so we would make quite a big difference actually between refusal of treatment and formally cooperating with ending someone's life. So if you're dying, we've never in our tradition, we've never said it's wrong to refuse treatment. People do it all the time and we support that.
They don't want to have treatment if it's just going to sort of slow up their death or whatever. So for us, there's a very big psychological and physical and spiritual and emotional difference between refusing treatment and formally enabling someone to end their own life, to give up on their value. Hi, I'm interrupting this event to tell you about another awesome LSE podcast that we think you'd enjoy.
LSE IQ asks social scientists and other experts to answer one intelligent question. Like, why do people believe in conspiracy theories? Or, can we afford the super-rich? Come check us out. Just search for LSE IQ wherever you get your podcasts. Now, back to the event. Indeed, sadly, not all suffering can be avoided, but...
despair that life is meaningless and indeed anything which destroys hope we feel is to be avoided, that's a fundamental thing. To make suffering an ultimate condition we think undermines that nature of the human person and civilization, the avoidance of suffering.
So, again, in the hospice where I work, the whole team, as in all hospices, does work, as I've said, holistically for the good of the patient. Someone is depressed, we work to affirm them, not to affirm their depression, to raise the possibility of actively supporting their giving up, I think, and we think is anathema to such an ethos. So we are assisting dying, we think. We are assisting it.
we're enabling it, not trying to meaningfully prolong it, we want to get rid of all suffering, but that for us is completely different from assisting suicide. This bill is fundamentally changing the 1961 Act, that's the main legal chain, even correct me if I'm wrong, but it's the 1961 Suicide Act, that's what is changing. So finally, if I've still got a tiny bit, just to say in terms of the
committee stage that we're at, which is at this stage, as normally in private members' bills, it's about safeguards and slippery slopes, etc. And we're happy to engage with that, partly to minimise what we see as something that's wrong for culture anyway. And
Also to maybe highlight the fact that we think that a key principle has already been bridged and therefore the trouble that they're having now over the High Court stuff, for instance, is High Court judges, is a sign that it's very difficult to find clear-cut safeguards and indeed we've heard Holland has a somewhat different approach to
to that, that if extreme suffering is the ultimate principle, what possible principles do we think are there to stop slippery slopes? Moreover, for a being that is by nature social and culture, like the human being, it's very difficult to discern the difference between influence and coercion. If we are right, and that this bill is going to warp our culture fundamentally, then it's well nigh impossible to make that distinction. And let's be aware that the
The text of the bill, correct me again if I'm wrong, is that a doctor, it mentions mechanisms, so a doctor can set up a mechanism to give the poison
to the patient but they cannot press the button. If all the patient can do is press the button then the doctor can do everything else. Were they to press the button or indeed be convicted of not just influencing but coercing then there's 14 years, maximum 14 years penalty for going over that line.
We think with the dropping of the High Court judge, which 60 MPs voted in favour of the second reading because of the High Court judge safeguard, with the quick dropping of that as soon as the judiciary said that it's going to clog up the courts, it's a sign the slippery slope has already happened. It hasn't got anywhere near the king's pen yet.
but things are already significantly reducing and they've flipped it in the direction of psychiatrists and the majority of 55% of psychiatrists have said they will not go anywhere near
I mean, again, correct me if I'm wrong, but my 55%, according to when I looked up their website, have said that they will not cooperate with any stage of the process of assisted dying. And yet it's sort of been suddenly flipped over in their direction. The slippery slope's begun.
This for us is because it has been accepted that the 1961 Suicide Act can be amended to accept formal cooperation in suicide. Thank you very much. So we'll come back to this point of suicide because the government's advisor on suicide prevention, they released a statement where they worried that the passing of this bill would undermine the sort of societal consensus that suicide is something we always ought to prevent. And as you've indicated, this is a sort of hard-won thing, right? It's been a long time in...
developing societal attitudes towards suicide to see it primarily as a sort of health crisis that ought to be dealt with compassionately and not something that we countenance, sort of encouraging or facilitating suicide. So we'll get back to that. But one of the first things you mentioned was
Some of the issues about practicalities. I want to bring in Kenneth, if that's okay. So I think it's fair to say you're one of Europe's leading researchers on end-of-life care, and you also carry out your academic work in Belgium, which has for some decades now had a much more liberal regime than is even proposed by this new government.
legislation in England and Wales. So would you also sort of take us through how this shapes your views on the subject and how your views have been informed by the research that your team on end-of-life care has carried out in Belgium? Okay, thank you. I've been scribbling a lot of things while the others have been speaking, so there's a lot of things that we can delve into. But pertaining to your question, what has it done to me, I think
I came into this topic as a kind of naive proponent, let's say, of assisted dying. And of course, as the years go by and as you build up the evidence, you see that it's not a black and white thing. So there's different shades of gray, let's say, to assisted dying. And I would say now that I'm still personally, let's say, in favor of assisted dying.
but with a very critical aspect to it. Of course, as a researcher, you have to stay critical, especially in view of the evidence that you gather, but also in terms of the conclusions that you tie to that.
So as you know, well, maybe not everyone knows, but Belgium actually copied the law from the Netherlands to a large extent. We have a bit of differences, but I think the width of the law in terms of it being beyond terminal illness, beyond...
beyond just suicide, so also euthanasia, and also allowing it for mental or for non-physical ailments or illnesses. That also applies in Belgium. And I think we have a privileged few in that sense in terms of Belgium and the Netherlands being kind of
laboratories, let's say, for the world to see how does it play out once you implement that law. And I think we can say a lot of things about practicalities. And that's, I think, where most of the critical aspects
let's say the critical aspects of reflection and discussion are poised. I think we in Belgium are largely beyond fundamental argumentation. We've already had the law for 20 plus years, and it's more to do now about how do we go about this, what are the problems that we are running into, and how do we solve them? I don't know if I have to go into a few of them.
I've heard a lot of them already that maybe the Belgian data and the Dutch data can speak to. But maybe say something also about the Belgian situation, which is perhaps a little bit different to the Dutch situation and also to the way that UK bill is now poised. So the Belgian legislation
leaves decision making largely up to the physician. So we call it the colloque singulier, that means the physician and the patient have a singular relationship between themselves and there is the idea that no one else has a say in what those two decide. For the euthanasia law, they made, well they enacted a number of rules
of requirements, for instance, you have to consult another physician, you have to discuss this with the team, but in essence, the physician, him or herself, can decide on their own. And that puts a lot of trust in physicians. That was actually one of the fundamental principles of the Belgian euthanasia law, which is different to the UK bill as I understand it right now. And I think that's a very big
safeguard, let's say, that would probably be difficult to implement in Belgium. And obviously, I mean, the sky hasn't fallen after 20 years of doing this this way or having the law in this constellation. It does pose a number of problems. For instance,
the reluctance of physicians, some physicians to engage. We don't have hard data, but we know that a large number of physicians do not wish to engage in this practice. There is this conscientious objection, you're allowed to do it as a physician, then you have to refer, that's an addition to the law that was made very recently,
And also what you said, in terms of advanced cancer patients, I think we're at a point where most oncologists, most general practitioners would be willing to accompany the patient throughout the trajectory on to death.
where we are seeing difficulties in terms of engagement of physicians is more in the realm of non-terminal illness. Think of people with psychiatric conditions, think of people with early stage dementia, think of people with old age related multi morbidity, not expected to die very soon and this,
These types of cases are still viewed by a lot of physicians as, well, let's say, not something that they want to engage in. And this is posing implementation problems. So this is just one instance. Can I jump in there? So I guess one thing people say in defence of the UK bill, right, is that it's very restrictively drawn. So this is a way that they...
proposed to stop this slippery slope towards a very liberal regime. But I guess if I think about some of the philosophical principles that have been outlined, so one is stopping suffering and the other is self-determination, it's hard for me, I suppose, to see the justification for drawing the bill so narrowly. So on the one hand, you might have people who have
conditions that cause a lot of suffering, so Parkinson's for example, as far as I understand it's hard to get a diagnosis that predicts you'll die within six months, although people often live very difficult lives when they have advanced Parkinson's, or even mental conditions, right? People purport to suffer greatly when they have certain mental conditions. So I guess one thing I struggle with is if you've got on the one hand this imperative to reduce suffering,
And on the other hand, this idea we should be allowing people to self-determine or to exit the game when they feel their time on the stage is over. I guess I struggle to see how you can justify drawing the law so tightly. And then the worry I've got is, well, maybe the people who say there's a slippery slope, they're kind of onto something, right? Because if you really interrogate the principles underlying that,
the assisted dying movement, then presumably it will liberalise over time and then we'll end up in a regime where you'd expect to be authoring euthanasia to people with mental conditions or people with non-terminal illnesses. So I wonder if you have a thought on this. I'm happy to speak to that briefly. First, I think one very important dimension which we haven't fully discussed is social learning. The principles I articulated, so...
reducing suffering and self-determination and the kind of security and the knowledge that you can avoid severe, prolonged severe suffering and indignity, if you so choose, require for them to be properly implemented
a network of knowledge among legal professionals, among doctors, and among people in general, and confidence and trust to slowly build up. I think it makes perfect sense from the idea that we need social learning to start with core cases that have a large degree of consensus in which this knowledge, social knowledge, can be built up, in which, of course, we can also learn how it works here,
The Netherlands, Belgium have very particular cultures and institutions. They may or may not be replicable with the same reliability in another country. So I think even as someone whose, as I pointed out, whose principles I think favor very strongly a more liberal regime like the Dutch one, it makes perfect sense to start in a more limited way to enable
the important amount of social learning that's required. I want to take some questions from the room. So I'm going to take questions two at a time if that's okay. So if you could stick a hand up if you've got a question. And maybe Talita will take one question from the online audience if that's okay afterwards.
Thank you. Two years ago I accompanied my wife to Dignitas. I'm interested to hear the use of the phrase slippery slope, which is a very emotive term. It implies that once you take the first step, there's an inevitability about descending into some Dante-esque inferno. I would suggest that actually by taking this first step in the current bill,
what we're doing is exactly that. We're opening the door and if at a later stage society decides that this has worked out okay and we want to move forward to expand to a Netherlands-Belgium type system, that's not a slippery slope at all. It's progress based on society's acceptance and it's all down to Parliament to make that change.
Thanks very much. And Talita will take one question online, if that's okay, and then we'll turn back to the panel. So the question is, how long did it take for Belgium and the Netherlands to pass the bill on this, and how did it happen so early in 2002?
Just in relation to your point about, first of all, I'm really sorry for your loss and that you had to do that. And I think the fact that people in the UK currently feel
feel themselves forced to travel to die in another country is one of the problems with the current bill. So I think we have to recognise that people are already doing this in this country but with no safeguards at all and they need the resources, the social resources to be able to do that. So it's tough for people, they need family to help and support them and not everybody has that.
So I think we have to recognise what's going on at the moment in this country, rather than thinking that nothing happens. We also know that people in this country
um stop eating and drinking tony nick that's what tony nicholson did before he died um again no safeguards there and that can be a a very unpleasant way to die so i think um in relation to the idea of starting small this idea of we start with this very restrictive provision i mean i think the bottom line is at the moment
this terminal illness requirement is probably the only thing that could plausibly get through Parliament. We've seen previous bills fail and I think there probably is possibly a majority in Parliament for a restrictive law based on terminal illness.
I don't think there is for anything broader. And in this country, it's for our democratically elected representatives to make the law. And what they say is set down the statute. We don't have a situation in the UK like they do in, for example, Canada, where court cases can change the law. That doesn't happen here.
so there's no way in which a uk court could make a decision in relation to an assisted dying bill which would change the law all they could do is send it back to parliament and it would then be for parliament to decide what to do about that so we don't have that system it's for parliament to do it and i think at the moment a terminal illness requirement i think the idea is is probably um the what what parliament might be prepared to agree to and i think what's
why people, I think Lewis was right to say, if the criteria are unbearable suffering, clearly unbearable suffering is not confined to people with terminal illness. But I think that the idea that in Parliament there may be a majority for something that can be construed as shortening the dying process
So these are people who are dying and assisted dying is available for them to cut short their process of dying. Now it may be that in other jurisdictions and it may be that at some point in the future in this jurisdiction the view on that will change but I think that's probably where Parliament is. Yes, so coming to this point of it being a pragmatic strategic choice maybe to just focus on terminal illness
in this bill. This is obviously not how it happened in Belgium and the Netherlands. Well, if you look at what happened in Belgium, you could very clearly see that the first years of practice, let's say, the first five to ten years were mostly, I think, 85 to 90 percent were people with terminal cancer and the other five to ten percent were other people with terminal illnesses.
It's only since 2010, 2011 that we've started to see cases of people with psychiatric conditions, people with dementia accessing the law. Even if we started out very broadly, let's say, or very liberally, the practice was focused very much towards those benchmark cases, let's say, the ones that are obvious.
advanced cancer patients, imminently dying mostly. We also have data on that to say that people actually lost only two to three weeks of their life expectancy using assisted dying. That's one point I'd like to make. The second point is also
maybe a caveat with that strategic view on this enactment of this bill is that, well, it's going to be more difficult to put the second step in because you have this assisted dying law, you have the assisted dying practice, and
making the next step would be actually confirming the view of a lot of critics and opponents that you are experiencing or that we are onto a slippery slope. And coming back to this question of
of you, sir. The slippery slope, this is a very negative term, right? This is the term that is mostly used. It's a cluster argument. A cluster term meaning different things to different people. It has different aspects to it, but voiced by critics and opponents.
having a more empirical view of things and again being privileged that we have 20 years of evolutionary data puts that into perspective. You could indeed also see positive aspects to the evolutions that we are seeing.
I've already argued numerous times to lose the term slippery slope because we can't use it in academic honest balanced debate.
Yes, with regard to the gentleman's question, I do have sympathy. I think you've raised an interesting point. I would use slippery slate but I do need to be a bit careful about that. It can be, as you say, it can assume it's negative without arguing that. It can also make us forget that people like your beloved wife, that's who we're talking about here.
And indeed, even from my side, we need to remember that we are trying to talk about the dignity of our loved ones. But the thing is that we do need to remember that, as your question, as both the questions have brought out,
to us that the current bill in England is just to sort of get through Parliament really and the current limits, there's going to be pressure on them from self autonomy as Lewis has highlighted and I think the panel have accepted and at the moment we're just trying to keep it tight because at the moment there's this sort of, at the very least an emotional thing that we really don't want it to happen to young people or people with non unbearable suffering, whatever that is.
But actually what has just been admitted is that's the direction we're going in. And we at least need to be quite honest that the degree of suffering that has to be involved and the age that has to be involved is actually, in the thinking behind this bill, pretty vague. And therefore what it's leading is to saying just suffering itself...
actually devalues your value as a human person. It actually can take away the importance of your life as part of a community, and it's that point that we, particularly in our tradition, think is wrong, rationally. I do have to disagree quite strongly on this.
So finally it's heating up a bit with all respect. You've mentioned a few times the idea of the proponents like myself of this position having the idea that suffering devalues life. Nothing of the kind. I want to emphasize firstly we both agree that suffering isn't evil. I think we can both agree that individuals themselves can find meaning in suffering and indeed
they will be free to find such meaning as they can, for example, to stay around if their loved ones ask them to stay around and bear it for their sake, but they will not be required to endure it if they themselves cannot find meaning in that suffering, if it for them is pointless. And indeed, I would say it
There's a devaluing perspective on people's agency and people's ability to give shape to their lives and to end it with dignity if they so choose.
It's that ability you pointed out, you know, you favor autonomy but only for certain purposes, purposes that you regard as, you know, fitting for human beings, including the preservation of your life and fellowship with others. Well, some people might understandably, out of fellowship with others, decide that they do not want to continue
suffering in front of their loved ones when they know this imposes great pain on their loved ones. And similarly, some may have ended up through age or circumstance without the close bonds that gave their life meaning and now face a period alone primarily suffering. I think in those cases,
It's, in fact, respect for the value of human life and our agency which compels us to permit them to seek euthanasia if they so choose. I want to say something maybe in support of your view, so I'm going to bring in Emily in a second. So one thing you mentioned was
issues of fellowship and you might not want to suffer in front of loved ones but one of the classic objections that you mentioned in your introduction was this idea that having the option to end your life introduces all of these psychological factors that don't exist in the culture where living until your life ends naturally is a default right and one worry people have had is that people might choose to end their life partly as a sort of
gift that they bestow upon others because they don't want to live as a burden. They know that they are taking up resources and time from their loved ones and there's this worry that although it might not be an explicit pressure that's being levelled on someone, they're not being coerced into choosing this, there's this much more implicit subtle pressure that exists
just by giving them the option. And I think it's the flip side of this thought about fellowship that one might worry about. I want to bring in Emily, then we'll take a question. I suppose I think having more options can be a good thing for people. And I guess I think my...
My feeling about assisted dying is that it's completely understandable that one would find this incompatible with one's religious belief. I think that's absolutely, completely to be respected and I totally respect people who would want nothing to do with this.
for themselves or for their family or who feel this is wrong. But I don't feel that way and I do want the option for myself and for people I care about if that's what they want. And so I guess I feel that the importance about assisted dying, it's not about making it compulsory for everybody, it's about saying for those people who do want this, for whom this really, really matters, even if it is just as a kind of comfort blanket, then that should be up to
up to them rather than to other people who don't share, we don't have, we don't share our views about life. We all have very, come from very different perspectives and have different views. And I just think we, it's like lots of different kind of moral questions and
People have their own moral framework that they live by and there's a range of frameworks. We don't all need to follow one. And I would like this option and other people might not want it, but that's fine. And in terms of the slip, going back to that slippery slope argument, I think it's really critical that we
We have a parliament that will be making decisions for us. It's a conscience vote. It's obviously not a party political one. So there isn't an inevitable slippery slope because it's only parliament that can decide to change it. And I completely agree with what...
alice said that the dutch and the belgian situation is very different from here and i don't think that a law like that would work here because levels of trust in medical practitioners in both belgium and the netherlands are really really high and i don't think we have that here and i don't think
that law would necessarily work. You can't just transplant one law to another place. So I'm not sure there is some inevitable slide. There might be people who want it to be broadened, but it would be for Parliament. If I may quickly just answer the question online that Talitha articulated. So you may know the history better than I do, because I'm not a historian of this process, but in fact the 2002 law in the Netherlands codified pre-existing practices.
That is, for a very long period, it was legally, in the letter of the law, prohibited, but de facto no one was prosecuted, so long as you followed certain guidelines that had been issued, agreed by the Dutch Medical Association. And so what the law did was legalize, so to speak, create a formal stamp on a pre-existing practice which had grown
out of medical ethics and medical practice, which was then not being enforced. So it's very interesting that this, it was, so to speak, a bottom-up process, a reflective process, which started, unless I'm wrong, already in the 1970s in the Netherlands.
Yeah. It was the thought that doctors had an irreconcilable conflict of obligations to relieve suffering and not to end life, but where you could only relieve suffering by ending life, it was thought that that was okay. So I'm going to take a question, but I guess it does require a very...
A large degree of trust in doctors, and doctors have this position of authority and some power over their charges, and they often have strong opinions themselves. So one might think that the responsibility placed on doctors to exercise that reasonably is extremely great, given the inherent vulnerability of many patients in those situations. Sorry, Kenneth.
Well, yes, I just wanted to add to the Dutch formation of the law and how it differs so much from Belgium. So as I said, Belgium essentially copied the Dutch law to a large extent. We didn't have that 30-year development, let's say, as it was the case in the Netherlands. Actually, we had a very liberal government in the late '90s
who put it in their government statutes that they would pass a law, and they did it in the space of four years. On the back of some evidence saying that this practice was already happening, clandestine, is that how you say it? Clandestine?
So there was raw data to support that and there was also, of course, the public support to do it. The only support that was lacking was the support of the medical field, so the medical associations and the palliative care field.
After the enactment of the law, that changed quite quickly, actually. So in the space of a few years, the Palliative Care Association and the Medical Association followed with some guidelines for their physicians. That's good to know, because I think the polling of palliative care doctors in the UK has shown they're rather negative on this new, rather restrictive proposal. I want to give some chance to the audience. So we will take questions from these two hands here.
I'm sure you can see what I was putting up. I'm a regular at this, and I have to say this is the first time I've been where the panel was so heavily weighted in one side of an argument. You have three people here who are all seriously pro-assisted dying against this one gentleman. I just wanted to make that point. What I wanted to ask, the real question was about the Zipari Slope.
Because this one of these gentlemen here just said some time ago how almost 4%, I think this is what you said, 4% of the deaths in their country are now linked to, I think you keep calling it euthanasia, suicide, assisted dying, being put down.
I don't know whether, and I hope to goodness none of you have, have ever been in a situation where you have considered suicide. Because if you have considered suicide, as I have, because of a particular circumstance, the possibility of being encouraged to go down that path
when you're at your lowest step, is immense. The idea that of you blithely ignoring coercion
I find staggering because there is nothing more grinding than the idea that somebody feels a burden and so somebody can put that pressure on. And I think the way you've glibly dismissed it is quite astonishing, really. And finally, what I find very interesting is we talk about the slippery slope, and I'm sorry, sir, but what you have seen across the world
is this law comes in as this one you're trying to bring in now will do, might do, hopefully it won't. And then the slippery slope begins to the point where one of these gentlemen pointed out that 12-year-olds can be assisted to die. 12 to 16, I think, they have to have parental consent. That above there, up to 18...
They can decide for themselves. We have seen in this country, whatever you think about the trans debate, whatever you think about that, you have seen an explosion of mental torment on one side of the argument to another. And that...
is not something that's solely evolved, it's happened, and what effect would an explosion of sentiment like that happen now when it becomes fashionable? And that's what happened. I'm going to pass on to the next question. I think we've got the question. Thank you. First of all, thank you for all of your comments. I've found it really interesting this evening. I think my question is more...
Maybe for Father McKenzie, but I'd be interested to hear any of your thoughts. And that's to do with religion. From a religious point of view, isn't it a better test of your faith if you actually have the option to disobey it?
It says just, right, is it a better test of your faith? Yeah, I mean, we affirm our freedom. As we say, we believe there's a meaning to freedom, a pattern to its full use, which is relationship with others. But, yeah, so we do have that test and that ability to say no, precisely because faith is about friendship. It's about an invitation to a relationship. And you can't force...
That's good that most of us are worried perhaps about too much coercion. So, yeah, that's freedom. Freedom is a good thing, yeah. So in aid of the gentleman's question, I maybe want to ask, because we have a panel who have some international expertise, are there lessons from the regimes in Belgium or the Netherlands that you think the UK...
learn from. I guess there are many aspects that
knowing your views you think are positive, but if you were to speak to a UK-based audience, are there aspects of these regimes that you think that our country should bear in mind as our law evolves on this issue? I would like to answer the gentleman's question directly first by saying that naturally I'm distressed as anyone would be at the suffering you went through and at the low point that you experienced. And I want to emphasise that the
The point of view that I've been putting forward, under no circumstances you sometimes mentioned that someone who is profoundly depressed or contemplating suicide would be encouraged to take that path. There is no regime in which this is intended to be an encouragement or pressure put on individuals by a physician. Rather, it's meant to go the other way around.
A request is meant to be put in... In the domestic situation. That's where the pressure is. Okay, let me elaborate my answer and then I'm happy to have a further clarification. So it's definitely not, under any circumstances, meant to be the physician who initiates the idea that here I suggest a way out for you. Rather, it's meant to come from the individual. Then it's not merely because the individual wants it. In fact, in preparation for today, I looked up
the latest data on individuals with mental illness who have requested either assisted suicide or voluntary euthanasia. And in the study period 2012 to 2018, more than 1100 such requests came in. They go to an expert panel
So they have to be signed off by two doctors and in the case of mental illnesses they have to go to a panel of experts who turn down 87% of the requests because the process, it's not a, you know, you make a request and that's the end of it. You start a long process of dialogue with the person including a dialogue about all the different possibilities of treatment. Now of that 87% that did not lead to approval,
some very substantial number of individuals decided after this long consultation that they did not want to go ahead with it. Secondly, one of the things is the person has to have no prospect of improvement. What does that mean in practice? Because of course you might ask what, you know, from the person's perspective if they're deeply depressed or distressed they may think there's no prospect when in fact there is. The fact of the overwhelming majority of the cases that was approved, setting aside even those that were not approved,
is individuals who have had more than 10 years of treatment, who have often explored rather extreme treatment options such as deep brain stimulation and other things, and who have comorbidities. It's not merely depression but other forms of mental illness alongside. So, look, this is just to say that you're right that we cannot exclude pressure
but it's definitely not meant to be an invitation. Rather, what it's meant to be is an invitation to a full discussion of all the possible forms of care and has to terminate in an assurance among both the individual in question and the physicians, two independent physicians, often in these cases a panel, actually more than two,
who believe that this is the only reasonable option given the suffering that the person is facing. So I did not at all mean for it to be flippant, but rather, and I think the practice, as you may be able to speak to it better, is not one in which this is treated lightly, but rather a process that extends often over a decade.
So I want to continue to take some questions. I'm going to take two from the room and one from online so we can take... I don't want to prioritise people at the front actually, that's not really a good... But yeah, you're almost on the mic so you can go. And then we'll take one from the gentleman in the... It looks like a black t-shirt to me. Sweater. Yeah, there we go. And then we'll take a question from online. We'll take them all together so we can have something to chew over before we respond.
Thank you so much for the panel. My background is in suicide prevention. I've helped thousands navigate suicidal ideations. And I'm curious when deciding on the age of 12, why 12 and not 10 when it comes to terminal illness?
because oftentimes the reason that children give for suicide are the same for 30, 40, 70, 80. And so while I understand that there may be cognitive development that's not quite there for a 12-year-old, parents can still at the end of the day say no. And so if a 10-year-old versus a 12-year-old, you know, what's that difference of choosing that age in particular? Thank you.
Hi, thank you for all of your talks, it's been very insightful. I want to raise a point of the state of the NHS, which there seems to be a consensus that it's deeply struggling. So adding this service, I know you spoke about palliative care not being impacted, but surely there'll be a strain on either all services in favour of this one, or this one will be in the same sense to all the others. There will be people falling through the cracks, there will be scandals, and how that will be dealt with when that happens.
and also in the same way the alternative of that being going to private healthcare and therefore dying being something that people can profit off of which I think we all agree shouldn't be the case. Thank you. Thank you. Talita, we'll take a question from online. So the question is reacting to Professor Alex. Does the UK bill formalise a practice that already occurs within the NHS?
And if you think that this bill usually includes provisions for conscious objections by physicians alongside guarantees for patients. Can you repeat that question? So the question was whether there's a provision for conscientious objection on the behalf of physicians and also... Guarantees for patients to be able to assess their consultation.
Maybe I can start with the first question on the age limit. I don't know if you have said that yet, but Belgium doesn't have an age limit anymore. So in 2014 there was a law amendment saying that age was as a criterion and so the full focus was then on the suffering of the person, suffering of the patient.
So in theory, it could be an eight-year-old requesting assisted dying. Of course, thinking to the developmental side of things and also the proneness of younger people to mental illness also, there were extra provisions for people under the age of 18. So yeah, you have to have physical illness, so that has to be physical ailment, it has to be terminal.
you have to have a psychological evaluation, psychiatric evaluation to ascertain that you are actually fully competent to request this very, yeah.
So this determination, and the last one is also that parental consent is necessary. So this for the Belgian legislator was a symbolic issue because we have only seen since 2014 about five or six cases in Belgium of under the age of 18 because they wanted to do away with the age criteria because it was discriminating to some extent.
and fully focus, as I said, on the suffering of the person, of course, with no prospect of improvement, terminal illness, and so forth. So that is also the reasoning behind the Dutch legislation. They've made it kind of wedged between 12 and 16 and 16 and 18, but for Belgium it's all the same. So does that answer your question? Does someone want to speak to the resourcing question? Because I think the gentleman's question was...
He's talking about, well, there's only a finite amount of money delegated to the health service. My understanding is in the proposed UK legislation, this would be taken out of the health budget. So the natural concern is then it's a competitor with palliative care. And I wonder if anyone has any comments on that.
Well, I think it would be an absolute mistake to see this as an alternative or a competitor to palliative care. Palliative care needs to be better funded and there needs to be better availability. Palliative care in this country can be absolutely superb, but not everybody can get access to it when they need it, and that is absolutely disgraceful. And we need better funding for this, and I think we should pay more tax to put more money into the NHS, personally.
But I think this would have to be, I think you're absolutely right, the NHS is crumbling, we all know about that. If this law were to be passed, it's not going to come in the next day. There's going to have to be at least a two-year implementation period, and I think it could possibly even be longer. And there will have to be proper resources made available to do this properly.
And I think we as a country need to put more money into our health service across the board, not just in relation to end-of-life care. So our time is dwindling, but I think we can squeeze in two more questions if there's some... Oh, there we go. Good stuff. The man in the... It looks green to me, but my eyes are bad. And keep your hands up.
The woman in the book looks also to me like a black thing. Yeah, there we go. Yeah, yeah, yeah, yeah. Hello. And I learn I'll get glasses for the next public event. Take it away. Thank you for a very interesting discussion. I wanted to touch upon the point made by Father Hugh regarding the difference between assisted dying and assisted suicide because the semantics are important.
Is it the case, and we were talking about slippery slope, sorry for bringing it up again, but isn't it the case that this starting as an assisted dying bill or end-of-life bill, but really at a point where you assist in a person who is already terminally ill, but eventually it leads to assisted suicide because you are looking at cases where a person is not terminally ill and therefore you...
semantically framing it as assisted dying initially, but eventually it becomes assisted suicide. Thanks. Apologies for this question not being perfectly elucidated. I'm still trying to wrap my head around things. That's okay. But, Father McKenzie, you mentioned that you draw a very sharp distinction between the withdrawal of treatment and assisted dying because, in your opinion, and correct me if I'm wrong, you said...
someone that, if we withdraw treatment from someone that is actively dying, they are in the process of dying. But I'm kind of struggling to kind of draw a very principle distinction where do we define that someone is actively dying? Because in the assisted dying bill, we have someone that is
inevitably progressive and there's reasonable expectation that they will die within six months. So how do we define dying? Is it temporarily contained to a positive action of withdrawing treatment? I'm just also struggling to define dying in that sense. Thanks. You've been popular in this room. Thank you. I think the two questions are...
related to each other because I think we see the key issue is that which causes the death. So if someone is dying because of a disease,
then to treat is to use extraordinary means to stop that disease from happening. But if you can't totally cure them, for instance, if they're dying anyway, the basic cause of their death is the disease, not the actions that you take.
And that's why at the moment to formally cooperate with someone causing their own death at the moment is illegal by the Suicide Act of 1961. And the proposal is to change that so that you can be, as it were, a party to the action, which in our tradition has normally been participating in the cause. You're actually becoming part of the
cause of the death. So that, I don't know whether that answers the questions that have been posed there.
I do want to come back to the disagreement with Alex. Can I answer the child question or do you want to get those questions answered? We have about two minutes, Hugh, so you can pick which battle you most want to fight. Let's just have it where we did actually have a bit of disagreement, which is great, because it moves things forward, I think.
In answer to the gentleman's question over here, I wasn't saying that people can't find, that you're saying, for instance, that people can't find meaning in suffering, and you've made a good point there. I suppose our position is that
and I think in our tradition, is that human beings intrinsically have meaning and that self-autonomy, in the way Emily was describing it, to sort of create your own meaning or to deny that there's value to your life,
in a self-determining way is for us a contradiction of what it means to be a human being. And the key point here is that what this law is doing, and I think we're in agreement on this, and we just need to be aware of it, but correct me if I'm wrong, what this law is definitely enshrining is the fact that there is no intrinsic value to your life and your life and your life if you decide that there isn't.
So it's introducing the concept that there is no intrinsic value and meaning to human life. That is a new idea and that's going to have significant effects, that's all. Just be, you know, let's reflect about that because if I've understood the answers to my point here and the disagreement we had, that is the point that particularly Alex was making.
So I think we're out of time, so I'd just like to take this chance firstly to thank the audience in person for coming along. Thank you to the disembodied online people in the void. And especially thanks to the panellists for contributing. And I'd encourage you to get involved in the political process if you have strong views on this, write to your MP and to reflect on how we should address this difficult issue. So thanks very much, everyone. Thank you.
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