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cover of episode TJ and Tremmel on Living with Cystic Fibrosis

TJ and Tremmel on Living with Cystic Fibrosis

2022/6/16
logo of podcast Beyond the Disability

Beyond the Disability

Shownotes Transcript

In today’s Episode, Janice Brown talks with an African American family with two sons who were born with Cystic Fibrosis. They share the story of learning their children had CF, and what life is like in a family with CF.

 

Conversation Highlights:

{01:32} Meet our guest

{04:25} The journey with Cystic Fibrosis

{15:18} Raising children with Cystic Fibrosis

{35:15} The six Ps. Pleasure – Purpose – Pride – Product – Practice - A Pearl of wisdom

 

Resources: The Judkins CF Foundation link: https://fightcf.cff.org/site/TR;jsessionid=00000000.app202a?px=4935803&pg=personal&fr_id=9008&s_src=boundlessfundraising&s_subsrc=bfAphSmsPfMsg&NONCE_TOKEN=309693393B36D1780807CFBEEB062F5F)   TJ's book: https://www.amazon.com/Boy-CF-Story-Acceptance-Endurance/dp/163308518X)  betterhealthandrehab.com