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cover of episode Some states shared private health information with Big Tech

Some states shared private health information with Big Tech

2025/7/1
logo of podcast Marketplace All-in-One

Marketplace All-in-One

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Novosafo
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Tomas Apodaca
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Tomas Apodaca: 作为CalMatters和The Markup的调查员,我发现加州泄露数据给领英,随后检查了其他州的交易所,发现了缅因州、罗德岛州、内华达州和马萨诸塞州也存在数据共享。各州声称数据共享是无意的,目的是为了接触未参保居民或跟踪网站访问者活动。泄露的信息包括通过预筛选工具收集的个人敏感信息,如家庭成员是否怀孕或残疾,以及处方药的名称和剂量。加州已经面临集体诉讼,联邦议员也开始关注此事,一位加州议员甚至致信卫生与公众服务部,询问是否违反了HIPAA。 科技公司回应称,他们的代码明确指出不希望收集此类信息,谷歌也明确表示不声称受HIPAA保护。然而,医疗保健交易所为了通过广告联系未完成申请的人,需要收集访问者的信息。这种错误发生表明技术非常复杂,但州政府有责任管理这种复杂性,并格外小心地对待居民的敏感数据。 Novosafo: 我们的节目关注到,州政府运营的网站在帮助人们注册平价医疗法案时,可能没有保障您的健康信息安全。各州是否在不知情的情况下共享了数据?州医疗保健交易所与外部公司分享了哪些类型的信息?现在各州面临多大的麻烦?科技公司对此有何回应?这告诉我们技术(无论是州政府方面还是互联网广告生态系统方面)存在什么问题,以至于会发生这种错误?

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Shownotes Transcript

An investigation from Tomas Apodaca, at CalMatters and The Markup, found several states were accidentally sharing private health information with tech companies. The tech companies receiving the information never even wanted it. Marketplace’s Nova Safo spoke with Apodaca to learn more about the accidental leak.