Join us each month to listen and learn from the experts – people living with rare conditions. We’ll
Seizures, sleepless nights, and mysterious white patches on his skin marked the beginning of Daniel’
Katie and Allie’s story began in childhood with unexplained clumsiness and subtle symptoms that inte
Philip’s journey with ATTR began with unexplained weight loss and gastrointestinal issues that puzzl
When Julian was just 6 weeks old, Kady knew something wasn’t right. Despite more than 16 doctors ins
When Julien was just 6 weeks old, Kady knew something wasn’t right. Despite more than 16 doctors ins
In our final episode of 2024, On Rare looks back at highlights from the rewarding and rare conversat
Charles, a recently retired cardiologist of 53 years, speaks with David Rintell, Head of Patient Adv
Erin joins David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Director of Patie
In today’s episode of On Rare, David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohri
In this emotional episode of On Rare, David Rintell, Head of Patient Advocacy at BridgeBio, and Mand
Sean joins David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Director of Patie
Alex joins David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Director of Patie
In part two, Eric continues talking about his experience living with Transthyretin Amyloidosis (ATTR
Eric joins David Rintell, Head of Patient Advocacy at BridgeBio and Mandy Rohrig, Director of Patien
Join David Rintell, Head of Patient Advocacy at BridgeBio and Mandy Rohrig, Director of Patient Advo
Becoming a parent to a child with a rare disease was extremely isolating for Effie. In the second ep
Effie Parks, a rare mom, a patient advocate, a podcaster, and host of “Once Upon a Gene” joins David
In our final episode of 2023, On Rare looks back at the wonderful, rare conversations with our extra
