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cover of episode 575- Autism Pleasantville

575- Autism Pleasantville

2024/3/27
logo of podcast 99% Invisible

99% Invisible

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Bryony Roberts
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Elio McCabe
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Magda Mustafa
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Mark Garcia
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Roman Mars
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Thomas Kaufman
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Lauren Ober分享了她被诊断出患有自闭症后的经历,以及她对自闭症友好型环境的设想,即一个没有让她感到不适的环境刺激的理想世界。她认为,虽然每个自闭症患者的需求都不同,但设计应该努力适应他们的感官需求,并为他们创造更舒适和包容的环境。 Mark Garcia作为Mesa, Arizona自闭症融合项目的推动者,讲述了该项目如何通过培训当地各行业人员,提高他们对自闭症的认识和理解,并最终使Mesa成为世界上第一个获得自闭症认证的城市。他认为,这既是出于社会责任,也是出于商业考虑,因为自闭症患者也是消费者,他们有消费能力和意愿。 Thomas Kaufman作为Lauren Ober的朋友,分享了他对Mesa, Arizona一些自闭症友好型商业场所感官环境的体验,并指出这些场所提供的“感官过载逃生空间”并不理想。他认为,自闭症友好型设计需要认真对待,不能仅仅停留在表面功夫。 Magda Mustafa作为一位专门研究自闭症友好型建筑设计的建筑师,介绍了她提出的ASPEX设计准则,该准则旨在通过控制声音、空间排序、划分、过渡、安全和感官分区等方面,为自闭症患者创造更舒适的空间。她强调,自闭症友好型设计应该以自闭症患者的需求为出发点,并将其经验视为一种专业知识。 Bryony Roberts和Lindsay Harkema作为建筑师,分享了她们正在进行的“神经多样化城市”项目,该项目旨在重新设计纽约市的公共空间,以更好地适应神经多样性人群的需求。她们认为,传统的公共空间设计往往忽视神经多样性人群的需求,公共空间应该提供不同程度的感官刺激,以满足不同人群的需求。

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A few years back, journalist Lauren Ober) was diagnosed with autism. She then made a podcast about her experience called The Loudest Girl in the World). And she found herself imagining a fantasy world where everything is tailored to Lauren’s very specific autistic needs. And she called this magical imagined place, wonderfully devoid of overwhelming stimuli "Autism Pleasantville."

"Obviously," Ober notes, "there’s not a one-size fits all diagnosis or even definition of autism ... as the autism adage goes: 'If you know one autistic person…you know one autistic person.' But despite our wide variety of needs, I wanted to know how design is evolving to better accommodate us" -- how were ideals being handled in the real world.

Autism Pleasantville)