Kristen Gray is the mother of Charlotte and Gwenyth Gray, who were diagnosed with Batten disease in 2015. Kristen and her husband, film producer Gordon Gray, founded the Charlotte and Gwenyth Gray Foundation to Cure Batten Disease.
Doctors explained that there was no cure, nor any treatment options for this rare neurodegenerative disorder which would leave the girls blind, immobile, cognitively impaired, and ultimately gone between the ages of 6 and 12. Kristen and Gordon were unwilling to accept this prognosis. One year later, thanks to unwavering dedication and an overwhelming outpouring of support from all over the world, they built a foundation which coordinated and funded a first of its kind investigational gene therapy clinical trial, providing the first signs of hope for a cure to families impacted by this disease.
Results are ongoing, but promising. The Foundation funded the pre-clinical research and treatment of 15 children to date.
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