In this episode, Lauren sits down with Certified Nutrition Specialist and health educator Alyson Roux (MS, CNS, member of the CAN and IAHC). Alyson lives with invisible illness (Familial Mediterranean Fever and degenerative disc disease), and also operates a weight-inclusive (HAES approach) practice in Silverlake, Los Angeles.

Listen as Alyson reveals:

- How an Ayurvedic practitioner originally suggested her diagnosis of Familial Mediterranean Fever, and how an episode of House finally convinced her to treat it!
- The common cycle of responsibility for one’s symptoms, and the continuing cycle to heal oneself as a survivor of invisible illness
- The lack of proper screening tools for mood disorders among those surviving invisible illness (and how many of us are prescribed an SSRI when doctors haven’t even screened us for such disorders)
- That the medication prescribed for FMF can cause significant B12 deficiency if not monitored properly – and that this deficiency is likely the underlying cause of the peripheral neuropathy with which Alyson currently lives
- That her degenerative disc disease forced her to go on disability for a brief period of time, and that this upheaval in her life opened the way to an entirely new career path in nutrition and wellness
- That the shift in Alyson’s health spurred her interest in dietary changes, which in turn changed her relationship to food in a positive way
- That poop is a great barometer for individual optimal health!
- The importance of weight-inclusive clinical practices
- The importance of bringing your health advocate to your doctors’ appointments, and why you should arrive at every appointment prepared
- Why we should all throw out our scales – and what you can say at the doctor’s office if you don’t want to be weighed at every visit
- How those living with invisible illness have to be deliberate with every minute of their day – and why that can be exhausting
- That “Compassion Fatigue” in the healthcare industry is real – and clinicians can be trained in how to cope with it!
- Why patients with multiple healthcare providers should make sure each member of their team is in contact with one another
- Why having a pet is one of the best things you can do for your overall health

This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit uninvisiblepod.substack.com

004: Familial Mediterranean Fever, Degenerative Disc Disease, and Nutrition with Alyson Roux, MS CNS 01:12:14 Share

Uninvisible Pod with Lauren Freedman

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004: Familial Mediterranean Fever, Degenerative Disc Disease, and Nutrition with Alyson Roux, MS CNS