Danielle Gulden and Joe Teeters are IBD warriors and permanent ileostomates. They’re comedians, speakers, advocates and Two Best Friends without Buttholes! Danielle has had ulcerative colitis (UC) for over 27 years. After going through nearly every IBD medication available, going to the bathroom 20-25 times per day, and having a toilet installed in her car (this is not a joke, folks!), she finally kicked her diseased colon to the curb in 2007. Her ostomy (and her stoma named Stella) saved her life and gave her back her life! Joe has also been living with Crohn’s disease for over 27 years. Like Danielle, he has run the gamut of medical treatments and medications. He has had a total of four intestinal surgeries, including two resections. In 2012, he underwent a total proctocolectomy with end ileostomy. That surgery landed him a spot alongside Danielle in the “Barbie Butt” Club! What’s that, you ask? Two cheeks, no hole, that butt is just for show! Danielle and Joe use their humor, wisdom, and stories to connect with and support other people living with ostomies and inflammatory bowel disease. They believe in the power of humor, advocacy and awareness!

Tune in as Joe & Danielle share:

that they were winners of “Hilarious Patient Leaders” at the WEGO Health Awards 2019
that Danielle changed majors because of her ill health, and wasn’t diagnosed with UC until she was 22
that getting a diagnosis was a relief, and gave Danielle a plan of action
that Joe had appendicitis at 14, and believes this was the first flare of his Crohn’s disease
that like Danielle, Joe wasn’t diagnosed until he was a young adult
that Joe’s diagnosis took 1 year to ascertain, and Danielle’s took 6 years
why Joe and Danielle both ended up with ileostomies
all about Danielle’s car toilet
what “Ostomy Bombing” is, and why they do it
how they met
that there are local support groups available through the Crohn’s & Colitis Foundation, as well as the United Ostomy Association
their work speaking to legislators and creating policy change in favor of patients
the importance of clinical trials to advance treatment options for IBD and other chronic illnesses
Joe’s favorite ostomy cover — Carter’s newborn baby onesies

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076: Ostomates Double Baggin’ It: Two Best Friends Without Buttholes! 01:11:47 Share

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076: Ostomates Double Baggin’ It: Two Best Friends Without Buttholes!